Juggling Life With Sudden Illness

We all know how hard life can be at times, especially the transition from childhood to adulthood and the responsibilities that are now all of a sudden up to us to take care of. When you throw in the extra complication of mental health issues to the mix, completing this adjustment seems an impossible task.

Life has a tendency to throw us an unexpected curveball when things seem to finally be going well. But by continuing to try balance life responsibilities along with a new challenge is most likely a recipe for disaster, (depending on how serious the challenge is).

Putting life on hold in order to focus, to sort out or to try get your head around these challenges as well as we can should be in no way seen as taking the easy way out, being selfish or letting anyone down. What’s worse is if something drastic happens and loved ones are left wondering “what caused them do resort to that?”

My challenges started in the early years of secondary school, when I was diagnosed with a neurodegenerative condition at age 13. If I knew then what I know now, that it’s ok to take time out to focus on yourself, my mental and physical health might have been preserved a little bit more.

They worsened when I was expected to just continue life as if it was nothing. From my perspective no one was empathising with my situation or cared for my emotional well being having to adapt to these changes; not friends, family or even DOCTORS!

It was like a taboo subject. I was noticeably deteriorating, but no one wanted to bring it up.

In school, all that matters is the results from exams and academic shit. Personal struggles can’t inflict on this, so when you’re handed an EXTRA responsibility to juggle, the priorities get rearranged, focus changes, all of a sudden, what was once the primary challenge in life now seems so irrelevant for future happiness.

The trouble with having a rare illness is that not many people relate to the complications which comes along as the baggage entailed, alienating a person and making us feel like we are facing these struggles alone, making a person feel less like we ‘fit’ in with society. This had a huge effect on my confidence, the feedback I would receive that nobody cared about this physical deterioration that was happening to me as a result of a rare condition obliterated my confidence of self worth.

Nobody has the right to make you feel unimportant. That’s why I truly believe now it should be perfectly acceptable to take time out to focus on yourself, your issues, your struggles, no matter if you’re in school, college, uni or working. Who cares what others think? Cos at the end of the day, if you’re unhappy about your situation, nobody but you can change that.

We’re all in this for ourselves so being selfish to reach the level of self acceptance to our standard is not a decision to be frowned upon, but really a brave decision to acknowledge that you need a break to work on personal struggles.

** disclaimer: opinions are my own as a result to my experiences and interpretations and should not be taken as fact.**

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